Datrix
Caring for Rare 2024 conference
01/10/24 10:18
From September 12th to 14th, 2024, in Belgrade Serbia, both IMGGE and Datrix participated in the Caring for Rare 2024 conference, a unique event on rare diseases that brought together stakeholders from across Central and Eastern Europe.
During the conference, the BETTER team contributed to the session titled "Empowering Rare Diseases through Data", which convened experts and advocates working to leverage data and technology to advance rare disease research and care. This session highlighted the potential for international collaboration and emphasized the critical need for patient involvement in data sharing. The discussion focused on the transformative role of data in advancing the understanding of molecular pathways, improving diagnosis, and driving innovative treatments for rare diseases. We also had the opportunity to discuss the European Health Data Space (EHDS) and present BETTER and its mission, which aims to create secure, privacy-preserving infrastructures for health data sharing.
Additionally, the conference provided a valuable opportunity to visit the IMGGE facilities in Belgrade. As a governmental institute, IMGGE is dedicated to acquiring new knowledge in molecular genetics, biomedicine, and biotechnology, with the goal of improving quality of life. Within the BETTER project, IMGGE plays a crucial role in Use Case 1, contributing their strong expertise in genomics and rare disease modeling. During the visit, we further discussed BETTER's long-term vision and explored opportunities to strengthen synergies in innovation projects.
During the conference, the BETTER team contributed to the session titled "Empowering Rare Diseases through Data", which convened experts and advocates working to leverage data and technology to advance rare disease research and care. This session highlighted the potential for international collaboration and emphasized the critical need for patient involvement in data sharing. The discussion focused on the transformative role of data in advancing the understanding of molecular pathways, improving diagnosis, and driving innovative treatments for rare diseases. We also had the opportunity to discuss the European Health Data Space (EHDS) and present BETTER and its mission, which aims to create secure, privacy-preserving infrastructures for health data sharing.
Additionally, the conference provided a valuable opportunity to visit the IMGGE facilities in Belgrade. As a governmental institute, IMGGE is dedicated to acquiring new knowledge in molecular genetics, biomedicine, and biotechnology, with the goal of improving quality of life. Within the BETTER project, IMGGE plays a crucial role in Use Case 1, contributing their strong expertise in genomics and rare disease modeling. During the visit, we further discussed BETTER's long-term vision and explored opportunities to strengthen synergies in innovation projects.
Exciting collaboration
15/05/24 13:54
Frameworks, Technologies and Digital Solutions for Building the European Health Data Spaces: two EU Horizon Europe projects are joining forces and strengthening synergies
The Coordinators of the Better AI Health project aiming to build a real-world health-data distributed analytics research platform with the goal to promote a federated learning framework for decentralised AI for real-world health data, and the VELES Smart Health Excellence Hub that has as mission to transform the Smart Health landscape in South-East Europe by pioneering the European Health Data Space and building the first Regional Smart Health Data Space started a cordial and constructive dialogue.
The aim is to find commonalities and areas needing intervention and support that can improve not only the quality of the work within each of the two consortia, but can also increase the outreach and impact of the two projects.
Dr. Irena Pavlova, Coordinator of VELES (grant agreement No 101087483) and Dr. Matteo Bregonzio, PhD, Coordinator of Better AI Health ( grant agreement No 101136262), with the support of Dr. Adamantios Koumpis of the University Hospital Cologne that is partner of Better AI Health, have converged to a flexible format that will enable effective clustering activities between the two projects to take place over the next years of projects’ implementation.
“We do not want to over promise at all – and given the fact that our clustering is voluntary, we prefer to start with small, but very targeted steps” said Irena Pavlova. Matteo Bregonzio explains that “a collaborative effort in communication and dissemination can only amplify the reach and broadcast our missions to a larger public. Furthermore, cross-validation of ideas and methodologies will be very valuable to assess how to deploy federated healthcare use cases at scale as foreseen by the European Health Data Space agenda”. Irena concludes that “it is only if we see how to join efforts that we shall achieve something bigger. And joining efforts starts from developing a mutual understanding”.
The consortiums shall start a series of Webinars that will be structured and informed by the research agendas of the two projects and address not only the researchers of the participating institutions but a wider audience of interested parties.
Dr. Irena Pavlova is with the Sofia University St. Kliment Ohridski, which is the largest university in Bulgaria, through its Centre of Excellence in Big Data GATE Institute. Dr. Matteo Bregonzio, PhD is CTO of Datrix | Embrace the AI Challenge, Italy leading a group of deeptech companies bringing hashtag
#AI to vertical markets. Dr. Adamantios Koumpis is Research and Teaching Officer at the Institute of Biomedical Informatics at the University Hospital Cologne and the Medical Faculty at the University of Cologne.
#AI
#EuropeanHealthDataSpace
#HorizonEurope
#BETTER
#VELES
#Federate
The Coordinators of the Better AI Health project aiming to build a real-world health-data distributed analytics research platform with the goal to promote a federated learning framework for decentralised AI for real-world health data, and the VELES Smart Health Excellence Hub that has as mission to transform the Smart Health landscape in South-East Europe by pioneering the European Health Data Space and building the first Regional Smart Health Data Space started a cordial and constructive dialogue.
The aim is to find commonalities and areas needing intervention and support that can improve not only the quality of the work within each of the two consortia, but can also increase the outreach and impact of the two projects.
Dr. Irena Pavlova, Coordinator of VELES (grant agreement No 101087483) and Dr. Matteo Bregonzio, PhD, Coordinator of Better AI Health ( grant agreement No 101136262), with the support of Dr. Adamantios Koumpis of the University Hospital Cologne that is partner of Better AI Health, have converged to a flexible format that will enable effective clustering activities between the two projects to take place over the next years of projects’ implementation.
“We do not want to over promise at all – and given the fact that our clustering is voluntary, we prefer to start with small, but very targeted steps” said Irena Pavlova. Matteo Bregonzio explains that “a collaborative effort in communication and dissemination can only amplify the reach and broadcast our missions to a larger public. Furthermore, cross-validation of ideas and methodologies will be very valuable to assess how to deploy federated healthcare use cases at scale as foreseen by the European Health Data Space agenda”. Irena concludes that “it is only if we see how to join efforts that we shall achieve something bigger. And joining efforts starts from developing a mutual understanding”.
The consortiums shall start a series of Webinars that will be structured and informed by the research agendas of the two projects and address not only the researchers of the participating institutions but a wider audience of interested parties.
Dr. Irena Pavlova is with the Sofia University St. Kliment Ohridski, which is the largest university in Bulgaria, through its Centre of Excellence in Big Data GATE Institute. Dr. Matteo Bregonzio, PhD is CTO of Datrix | Embrace the AI Challenge, Italy leading a group of deeptech companies bringing hashtag
#AI to vertical markets. Dr. Adamantios Koumpis is Research and Teaching Officer at the Institute of Biomedical Informatics at the University Hospital Cologne and the Medical Faculty at the University of Cologne.
#AI
#EuropeanHealthDataSpace
#HorizonEurope
#BETTER
#VELES
#Federate
